Random thoughts on Bug

This morning I have been sitting here watching my little girl crawl all over this house...a milestone that my husband and I prayed for at least a year for her to reach...and she is getting into everything she shouldn't and making messes, eating fruit loops off the kitchen floor from yesterdays breakfast (nope I don't sweep the kitchen everyday folks--gasp!), she's so animated when she finds a receipt on the floor-it's almost like she's hit the jackpot of hidden treasure!

When I say things like, "I can't wait until she start's walking!"....people will say that I just think that and I know that they mean well but they don't know where my heart is and they aren't living in our shoes or our lives. I don't just want Bug to start walking for me, I want it for her. When she started crawling she became so much happier...a whole new world was opened up to her. A world that was shut off to her because seizures had set her back and medicines had cut her abilities down. Bug is our world...and we long for her to have the ability to see her world the way she wants to. She has so much to deal with, so much. I just long for her to be able to walk and play with other children her age...something she's not able to do. That really is the least of my daily prayers for Bug...but it still causes my heart to ache.

We have so much to be thankful for, of that I am certain. I am always reading the blogs of people whose children have Infantile Spasm syndrome....and there are children out there who have it--and their cases are so much worse than Bug. I read their stories and I pray for their families and I thank the Lord for the health that my child does have. To briefly update those who do read this blog--we are still waiting on the new medicine. She is still having seizures, some are very long and troubling. We are hopeful that we will get the new med this week.

As always, thanks for reading my blog...today is more of a ramble than a blog. Random thoughts out loud.