So Hopeful...

Yesterday morning we made the trip to Bug's neurologist to have her VNS turned on. Alot of people have been under the assumption that it was already on after her surgery, however, it was not.

She is not in pain with this stimulator on and inside of her. At it's current setting it is on for 7 seconds and off for 30 seconds 24 hours a day. When it's on and she hollars or makes a sound her voice vibrates due to the little tickle it gives her. We have used the magnet twice thus far for her seizures and have seen it work fairly quickly. We will not see a dramatic decrease in seizure activity most likely at this setting of the VNS.

Once again, for those of you that do not know this surgery was a 1-2 year commitment. It may take that amount of time to get to the right setting for Bug to see if this is what will be successful for her. We are optimistic and know that ultimately it is in God's hands, not ours. It's always been in His hands... right where we want to be.

We know that she is such a little trooper in all she goes through--she has a story to be told--and she tells it with that bright smile of hers--it's always on that sweet face of hers no matter what is going on with her. Pure joy in it's finest form!

So we are hopeful. So hopeful.

Much love,
~K